Today's Appointments

Quick thought first----If you are trying to view by blog from your phone you can't see the extra tabs at the top of the screen, for you to understand more about "Our Journey" you are going to want to click on the tab, "how it began" tab to read my full story...

Ok back to today....
Tuesday's are usually our busiest days when it comes to appointments for Hunter. I try to put them all in one day so we don't have to miss more then a half day of school. The morning started off with OT. He is making great progress in OT!!! We talked a bit about his bike riding and how it's really going to help with the muscles that are weak and the joints that are locked up. I mentioned that he is a great rider, but his pedals keep breaking. She said this was due to him pushing to hard. He doesn't know when his body ends so he keeps pushing. This makes sense with the fact that Hunter seems to enter people's bubbles. Also, when he goes to hug you sometimes he'll almost knock you over. His spacing is off. I'm hoping this will all begin to be fine tuned with the OT. After OT we had a therapy appointment to check in with how things are going at home. Like I've mentioned in our back story the main issues we have are at home. Not listening and issues with Hunter and Jack, not to mention the over stimulation for the day at school. I have always said that I would rather him work his hardest at school and at home freak out, it's his comfort spot. Your home is where you can be yourself. Now we shouldn't always act crazy at home, but you know what I mean. We're learning new coping methods, and catching himself before the over stimulation kicks in. Before there was no stopping it and then it was out of control, since working on these things, it has gotten better. We're also working on ways to work the OT into everyday life. His therapist spoke with his OT and they are working together so that everything can intertwine. It seems like everything is falling into place and I couldn't have happier. After his therapy session we went to PT. He's been working on his exercises at home and they taught him some more today. This is only his second session so I haven't really been able to judge any results from it yet. Today was just such a good day, and full of positive feedback!! I love those days! Tonight Hunter and I have Cub Scouts, it's popcorn kickoff and I am the chair for the popcorn fundraiser (let me know if you want to order) We have to do a presentation to the pack. I stayed up way to late making charts for each den. I used glitter, but I promised him it wouldn't be girly colors. LOL. On the good side....my crafting skills are so little that it looks like the scouts made the charts themselves. Oh well...At least I tried.

Something not so cool...

Today Hunter spent the majority of the day outside riding his bike with the neighbor kids. We live in a great neighborhood, with wonderful kids and parents, however sometimes children from other blocks come over and attempt to play with our children. I have to say that this makes me less then happy, it's not I don't want my children playing with others that aren't on our block, it's that these kids tease Hunter. I would be happy with him making friends all over the globe, but I'm not ok if kids make fun of him. While he was outside biking and wrestling with the neighbor boys, these other boys came over and started to name call at him. They called him fat and chubby. The truth is we could all stand to loose a little weight however we don't need to name call others. My neighbor said that when she looked over one of the boys pushed him in the head, she was just about to go say something, but then it stopped as I came out to see how he was doing. I guess they chased him around before the head pushing. Hunter thought they were playing with him. He doesn't really get it when kids are teasing him verses when they are playing with him. Sometimes I think this is a good thing, because then his feelings aren't hurt over and over, but on the other hand it makes him a target for bullies. He doesn't stand up for himself, because he doesn't get that he should. When I asked him if they were being mean, he said no and they were just playing and they told him that when he said "we're playing right?" I have a really hard time with this....as a mother I want to protect him for anything harmful, keep him home so no one can ever hurt his feelings. I think we're going to start him in karate so that if ever did come down to someone trying to hurt him he could defend himself if mom isn't there to kick some butt!!! LOL Plus as a bonus karate is good for flexibility, conditioning and stability, all things were working on it OT and PT.

Weekend Adventure

We had such a wonderful weekend! We took an adventure to the Renaissance Festival. I have never been there before and was more excited then a kid in a candy shop! I thought I was going to burst from excitement! We had so much fun! My favorite part was the jousting. It was so cool! The kids had a blast looking at all the shops and playing some games. We tried a bunch of different food. Hunter's favorite was his chocolate dipped frozen bananna. I have to admit it was really good! I sure hope that this is going to be an annual event that we attend!!

Here we go...

Well here we go....I've never blogged before. This is a new adventure for me in this crazy thing I call life. I titled my blog "Our Journey" because that's what our life has been, a journey. We've had our ups and downs, our struggles and our achievements. Life is always been a journey and will continue to be one. I want to tell our story about our son, Hunter. I want to raise awareness on the condition he has and how we have come to find out what it is, how to deal with it and how to keep "Our Journey" alive. If I can help one person in this lifetime to understand what their child might be going through then I'd say this journey has been a success. You never know what may come of this.... Maybe I'm on to something or maybe I'm providing entertainment for others. Either way I'll be satisfied with the outcome.
I'm not the best writer, I tend to type as the the thoughts are going through my head as if we were speaking face to face or over the phone. I tend to jump all over the place with random thoughts and ideas. I'm ok with this..It all makes sense to me in the long run. LOL
Well here goes nothing and everything all at the same time!