Well, again it's been awhile since I have posted. I really need to work on that and get better at updating more often. Oh well...Life is crazy busy and sometimes just gets in the way. Since the new year there has been many new things that have happened and outcomes that have been made. Hunter continues to make great progress with his therapies and we will be cutting down back on how often we are going. The OT has been amazing but at this point is at a stand still. Hunter isn't showing as much progress as he was so the therapist is going to have him stop for awhile and then we'll hit it hard again in a few months. Hunter has grown quite a bit and we need the muscles to catch up so we can work them again. His therapist has put him out to once a month and that's great. Our home life has been much better lately. Hunter still has his moments, but not nearly as many as he used to. When he has those moments I can't believe that we used to deal with that everyday. When that happens is when you can really see the progress. Hunter is still taking his supplements and is gluten free. The gluten free has really been amazing to see the change in his behavior. When he does get into gluten he reverts back to the "old" Hunter, the naughty, yelling, agitated, and over stimulated Hunter. I believe I've made my point to way he needs to be gluten free and the family agrees with me. (I love when I'm right) School has been going OK, I think it could be better and he could try harder to get his work done when it's suppose to be done. Homework is still an issue for us, and a battle, but it's getting done fast and more efficient lately. We were once again denied a special ed evaluation for him at school. I really have a hard time with this...He has a sensory disorder that is treated with OT, and the school has an OT on staff, but because I won't let his DX in his medical record say that he has ADHD they won't give him OT services, He's to smart for special ED. Here goes my issues with that...Special Ed doesn't always mean SLOW!! ARGH! It's frustrating to me. So, I'm over the fact that he can't have OT at school. I continue to take him once a week and yes he does miss some school and yes I do miss some work, but you have to do what you have to do for your children. We decided to try to qualify for a 504 plan, this would allow for certain accommodations for him in the classroom. Like to type a paper instead of write it. (he has a writing deficit) I had notes from his OT, and a letter from his therapist and a meeting with the school and they discussed it for a month and then denied him the plan. His teachers that he has right now are allowing these accommodations and it's really helping him, but my question is will other teachers in the future? I'm going to try again next quarter when they have notes from the teachers stating that it's helpful to him and it is a good thing. I don't like being mad at his school, I LOVE his school and it's really tough being angry with something that you love. So I guess we just play the waiting game and either they give in or I give up...Pretty sure we all know what's going to happen....this mom doesn't give up. I'm also going to have some new testing done on Hunter, it's testing for neurotransmitters and we're going to be able to tell what's over firing and what's under firing and then get on the right RX for supplements. I'm still refusing to treat him with meds, and that's why I can't get him the services at school. I believe that his ADHD comes from his sensory disorder, if we get rid of the sensory issues then the ADHD will cease to exist. Why would have have him DX with ADHD if it's due to something else and I believe we can fix it??? I'm not going to put my child on meds for ADHD to only make him more anxious and need meds for that and then that makes him not sleep so he'll need meds for that, but they make him want to throw up so he'll need meds for that...Pretty soon your child is on so many meds for side effect reasons that they aren't themselves anymore. I just can't do that to my son. Not at this point anyways. (that's my rant on that)
With all that being said I hope I made sense...LOL
My future goals are to figure out how to help my child to succeed in school to his potential not someone else's standards. I want to get these tests done and get his supplements going, and eventually not have to go to therapies unless to just check in.I see that in our future.
OH on a side note...Hunter had a birthday and is 9 now! We had a wonderful party with swimming and friends. Lexi made an amazing gluten free cake and it was SO yummy!!!
All right, I'm off for now. Remember to keep positive and everything will happen. You have to stay strong and stick to what you believe in!!
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